\n<\/p>\n
Charity Brain Tumour Research said the disease was the cancer most likely to kill patients under 40 in the UK.<\/p>\n
They said charities made up more than 75% of the total national investment in brain tumour research, with the government funding sitting at 25%.<\/p>\n
Following the announcement, chief executive Dan Knowles thanked Goodburn for his “tireless efforts” in raising awareness of the disease.<\/p>\n
He said: “We are optimistic that this renewed focus will help ensure discoveries in the laboratory actually make it to patients who so desperately need more options.”<\/p>\n
The Rare Cancers Bill, led by Edinburgh South West MP Scott Arthur, became law earlier this year.<\/p>\n
The legislation aims to incentivise research and investment into the treatment of rare types of cancer, defined as those affecting fewer than 1 in every 2,000 people.<\/p>\n
But Goodburn previously said that did not go far enough and a dedicated brain cancer lead would allow for greater focus on specific research and trials.<\/p>\n
Arthur said the act was “vital” to driving research needed into the condition, but Goodburn’s meeting with Burnham could lead to further work in the field.<\/p>\n
“There is real opportunity in the sector to dismantle the barriers to research that charities, clinicians, and researchers have known about for decades,” he said before the meeting.<\/p>\n
“Having met Archie a number of times I know he is a fantastic advocate for the brain tumour community.<\/p>\n
“I hope his meeting with the prime minister is a moment for concrete progress to be made.”<\/p>\n<\/div>\n