\n<\/p>\n
Luke Grindlay, 23, was diagnosed with HSD in primary school when teachers noticed he struggled to use pens and cutlery.<\/p>\n
He hasn’t sought treatment, which he says is probably down to “imposter syndrome”, fuelled by a lack of information on HSD.<\/p>\n
“If you go online to research this, there’s nothing there\u2026 I’m going through a lot of pain, but because I can’t find anything about it, it’s almost like I’m making too much of it.”<\/p>\n
The unpredictable nature of how HSD can impact me means I relate to this idea of imposter syndrome. Sometimes I can run long distances without too much pain, while other times a shopping trip can tire me out. <\/p>\n
Luke works in golf and his role can require a lot of waiting around on courses, which can be painful. However, he says: “It’s hard for me to tell people, because not many people know about the condition.”<\/p>\n
Luke finds the impacts hitting “harder” as he gets older. <\/p>\n
Vivienne says her social life and work has been impacted. “I used to work as a massage therapist in work places, but I couldn’t stand for long and I would get really tired.”<\/p>\n
She changed job, and now works as a massage therapist for people living with dementia, which is less physically demanding.<\/p>\n<\/div>\n